Pain

Have been gone for week with school work, and it has been a long week at that. Tonight is a painful day for me. My chest is so sore, it hurts to breathe, which we all know is something thag needs to happen, continually. It is absolutely no fun and I hope it goes away. I have been at home for the last 3 days, so my schedule of medicines is so off. That is kind of bad because no body is so used to my set school schedule and getting off of that throws my body off and makes it not happy. Ugh. Should be starting my immunotherapy soon, so that will be nice, because then I can decrease the amount of medicine I have to take down to a reasonable number. Well, to sleep for now.

Longest Week of My Life

This has been one of the longest and busiest weeks of my life, and it is only Wednesday. After the flooding two weeks ago, all of my assignments got pushed back and condensed to get done before Spring Break. So this week I have three papers, two quizzes, three homework assignments, and two lab reports due, which means that I get zero hours of sleep. I have done about half of those assignments already, minus all the papers. I have a 8-10 pages paper that is due tomorrow at 3pm, I am currently at the end of page 6, and my other two papers are due on Friday. This longer paper is killing me and I am trying to figure out how I screwed myself so much that I am basically writing this paper is just 24 hours. I am hoping to finish the paper by midnight so that I can revise it and get some other homework done. I am just so tired, I don't really care right now. My friend is in the room with me so I am sure she thinks I am just typing way at my paper, but she would be mistaken. This week has also been long because anything that can go wrong, has. I spent the majority of Monday and Tuesday fighting with my insurance companies to figure out who was paying for my allergy immunotherapy, but I think we finally have that figured out and I should be getting those ordered soon. My friend and I are also planning on moving off campus next year, and some drama came up with her mom about it so we had to deal with that, but again, thankfully, we have that figured out as well as we are signing our lease in two weeks! Wow, being an adult is just stressful, but it is also worth it. Having my own apartment and being properly medicated, dealing with my fibromyalgia on my own, being an adult is just an excitement so far.

Good Friends Help Bad Days

I don't know what happened today but it was just a classic fibromyalgia day. I woke up on time for my 8 am but I was in so much pain and still under the heavy influence of my medicines from the night before. So as I always do on mornings when I am not feeling good, I texted my friend to let her know that I was alive but that I was staying in to sleep in/ not go to class at all. After that one text at 7:50 and a call into the Pulmonologist to cancel my appointment, I fell back asleep with an alsrm set for 9:15. Next thing I know, my friend is standing over me, waking me up, handing me my phone, and then packing my bag for class. Have I ever mentioned how great my friends are? I had a statistics test for 11, so at 10 she came into my room and checked my phone to see if I had any alarms set (my dorm stays unlocked because I am HoH and she knows the password to my phone) and when she noticed I didn't, she woke me up to ask if I was going to class or not. On days we have 8ams together, MWF, she texts me to see if I am up at 7:30 and if I don't reply she comes and gets me up. On days I only have an 8am I usually text her to let her know I made it to class and if I don't text, she comes and checks on me before our 11am, as what happened today. I am so thankful for my friends and everything they do for me. I don't ask her to text me every morning to make sure I am up or to come get me if I don't. I don't ask her to pack my bag while I struggle to wake up and understand that getting out of bed is necessary. But they do it anyways. I am thankful they understand my medicine makes me over sleep and that they understand that because I am HoH (hard of hearing) and I sleep unaided, I sometimes don't hear my alarm. I am so blessed for having the friends I do because otherwise I don't know how I would get to classes most of the time.

Allergy Shots

Just a quick update. I went to the ENT today for my follow-up. Last time I was there, it was after 4 months of constantly coughing and not being able to breathe. She ran some tests on me, one that included allergy testing, and referred me to a pulmonologist, who I have a follow-up with on Thursday. The allergy testing was just so fun. I got poked 60 times by needles (I hate needles) and had to sit still for 15 minutes (more like 20+ because they forgot about me). Anyways, they found out that I was allergic to almost EVERYTHING. Grass, trees, animals, weeds, molds. Just tons of stuff. After the test, the technician mentioned allergy shots as a possibility for me because my allergies were so severe, but mentioned nothing more. I brought it up to my pulmonologist, who said I had moderate asthma and fixed me up with new meds to stop my cough (THANK GOD), and he even said that yeah, it was a good idea for me and it would help my asthma as well. I looked into it some and found out the needles were itty bitty and that it was highly effective and so I figured why not, so today at the follow-up the ENT mentioned it again as an option and I said yeah, go ahead. So long story short, they are calling my insurances to see if they will cover the shots (they are a 3 year treatment and expensive) and sent in a prescription for an EPI pen for me. I have to tell you, I have been prescribed some medications over my years of having pain, but seeing my Walgreens app pop up and say that my EPI pens were ready to pick up scared the crap out of me. Like, I think it just hit me that I just agreed to stab MYSELF multiple times a week for the next 3 years. My doctor also informed me that with asthma, the risk of having an allergic reaction to the treatment was higher than a normal person and that scared the crap out of me. That something I could have lived without knowing. Thankfully, if everything works out with the insurance, I, and most likely my friends, will get trained on how to do the allergy shots to myself and on how to work the EPI incase I do need it, so that makes me feel a little better. Until I get that call saying yay or nay, it is just a waiting game..

Beyond Tired and Behind

Oh the joys of having fibromyalgia. Since we got rained out of school last week, all my assignments got pushed back to this week and I already had to miss school this week for follow-up appointments with my ENT and Pulmonologist and I have a 10 page term paper, 3 page chemistry paper, a presentation in class, and a proposal for another 10 pages term paper to deal with for next week. Therefore, the rain has caused my calm week to become hectic and I have a lot to do. And of course, this is when my fibro decides that I don't want to focus and that sleep is needed at all hours of the day. I have been extremely tired for the last 3 days and have spent the majority of my day sleeping instead of catching up on homework. Now I have a biology test in two days and I haven't had a chance to study and a statistics test in three days. Gonna be a long week.

Allergies

I had an allergy test done about a month ago and it showed that I was pretty much allergic to everything. So for a month, I have stayed constantly drugged on Zyrtec and Singulair to try to keep my allergies at bay. Before, my allergies would cause my asthma to act up and the weather here in town has changed by 20 degreeses nearly every other day, so it was miserable. Now my asthma and my allergies are 'under control', which is exciting. Bad news, I miss one day of allergy medicine and my body freaks out. As per my earlier post, I did not take any of my medicine last night and I am now dealing with the effects of that. My hands just started itching so bad after I grabbed some ice cream, so I am guessing the cold set it off.. Now the itching is spreading to my back and my stomach, so I am going to go take my medicine really quickly before I go crazy from itching. I have an appointment with my allergist next week, so maybe we can get some better control over my allergies. We will see how this goes.

Chicken Nuggets and Ice Cream

Last night was formal for my school, and since I was originally scheduled to have 3 tests this week, I had long ago planned to take off work and relax with some alcohol. With the rain, my 3 tests got reduced down to just one, but I studied my butt off for it, so I felt alcohol was still warranted in this situation. Of course, enjoying a night of alcohol meant I had to plan ahead and make sure all my medicine was out of my system before I took the first sip. I took my Thursday medicine as normal, but took none of my Friday medicine. By the time I drank, it was all out of my system and I was free to enjoy the night. It was a good night though. I enjoyed myself and it was a time when I could finally let loose and enjoy myself. Before this day, when I was having good day, I was going 7 days a week. I had class every week day at 8 am and work at 7 am every weekend so I never had a day I got to sleep in or a day I could drink without jeopardizing the next day. I am so glad that I decided to take a day off work and that I went to formal and enjoyed myself; it was much needed. I slept in this morning, got some breakfast, and then stayed in bed for the rest of the day until I just got up to go eat some dinner. I probably drank too much, but hey, it was worth it. I always enjoy a good night with my friends. Not so much pain today, but I will give credit to the booze for helping that. I took my 3pm dosage today because I figured most of the alcohol was out of my system and I had to get medicine in me before the pain kicked back in. Unfortunately, tomorrow is Day Light's Savings and I have work at 7am, so let's all cross our fingers that I don't over sleep. I have so much homework and studying to get done tomorrow, so we will have to see how that goes... it probably won't. Until tomorrow!